I didn't get back until 4:30 this afternoon, but there are some changes to note, and some things aren't changing yet. Sarah and I, to be quite honest, are starting to run out of whatever it was we were running on. We are starting to feel a little like what we see Ari going through.. are we coming or going or just spinning in circles? We kinda wish that whoever is reading this story of our lives as we live it out would hurry up and turn the page. So about Ari... She is still having her stomach problems, from the gas pain to the constipation pains to the vomiting. Noone seems to know what to do. So tonight as soon as I got back to the hospital we met with a different doctor, and he feels like a lot of these problems are because her intestines are not processing properly. He is increasing her milk of magnesia because this actually makes her intestines work instead of just lubing her up. They may do an xray of her intestines and stomach, and possibly have to do another enema if it doesn't look good. This is normally an uncomfortable subject for people, the nasty stuff, but I can't explain the pain she is having right now with this and the straining Ari goes through. Our hopes are just to have an answer as to why she is having all these problems. The trial and error and guessing is getting old. She has also been having these random things where her eyes kinda do a rapid blinking, for a few seconds, and then she kinda just turns her head and resets her focus. Sarah and I noticed them about a week ago and agreed that if they stayed random like they were we could deal with it for fear the doctors would put her on some more drugs. But they have gotten to be more frequent, about once every fifteen minutes, so after I got back tonight and Sarah and I talked, I asked the nurse to contact the doctor and let her know about this. They then contacted a neurologist, and he stopped by at about 7pm. He is ordering another EEG, this one will have video recording so that as he reads the test results he can watch Ari and actually see what she is doing. The worry is that these are seizures. Unfortunately, he wants to increase her valium back up a little now that she is almost weaned off it. Furthermore, he won't be back until next Tuesday to read the EEG. We are a little unclear about something he said about maybe needing to transfer her to All Children's, but we think that was only for an emergency EEG if she needs it while he is gone. I'm still going to claim that her brain is just pushing the reset button, trying to get things right in there, and these are not seizures. That is my hope. Her muscle tone is good, a little bit more than it was, but not bad considering her valium is down from full doses 4 times per day to half doses twice a day. Therapy says just keep working with her and she should be ok. She is continuing to improve on holding her head up, and Kristine the Occ Therapist even put Ari in a standing frame today to see how she did. She did well. Watching Ari, as she is right now, is so very hard. Her progress has almost come to a stop in the last 4 or 5 days. We can't help but wonder if we are pushing for the right things for her and making the right decisions. We are both second guessing ourselves, the doctors and each other. Don't get me wrong, Sarah and I are tight, and anyone that knows us knows we always have been and always will be. But this slump in progress is wearing on us. I'll update tomorrow night, and surely some things will have improved or we will at least have some answers. Love to all.