Wow, I didn’t realize it has been so long since last update. Arianna continues to do good in her therapies; she hasn’t even been giving her PT Aries such a hard time anymore and almost seems to be working with him instead of fighting him all the time. She is sitting for a little longer on her own, her PT Lana has been sitting her with her legs straight out in front of her and having her support herself with her arms on the ground on her sides. I put some new pictures of her sitting and playing in her noisy box. Last night she was in her noisy box and slowly lifting her right arm up and back looking for a plate that is hanging in it and when she felt it she would make it swing and hit the sides of the box, a couple of times she was even holding the plate.

Arianna had an appointment with her GI doctor last week and I got to learn how to change out her Mickey button ( I’m not looking forward to having to do that) but she was happy that Ari was eating most of her meals by mouth, and that Ari gained a little over 1 pound since she started eating by mouth. They didn’t know that I had started feeding her by mouth and getting rid of the tube feeds until her appointment, I tend to just do it and then let them know about it after the fact. We are trying to get Ari to start chewing more; she is eating chunky foods now she just doesn’t chew but a couple of times.

Ari also had an appointment with her neurologist a couple of weeks ago and they ordered another MRI, we won’t get the results of that until her next appointment in January. I’ve got mixed feelings about getting the result, I know that there is going to be improvements since her 1st MRI, I just don’t want to here their point of view, and they always seem to be so negative. She also added CP to Ari’s diagnosis and gave us some information for the CP organization in hopes that they will be able to help us with stuff for Ari if we need in the future.

We had to go back to Tampa General to get a copy of her first MRI and while we were there we ran into one of the Dr’s that took care of Ari , and one of her the therapist that worked with her and of course our favorite nurse. None of them could believe how much Ari had improved. Everyone but the Dr. asked what type of therapies we were doing, and were glad to hear that we had went the alternative route, The Dr told us that whatever we were doing to keep doing it cause it was working and didn’t ask what type of therapies we were doing with Ari (I think its sad that some Dr’s wont even look at alternative therapies even though they see people getting results.) I pray that one day they start to open their eyes and see that there are other options out that work better than the medicines that tend to cause more problems than you already had.
Well I think that is everything. We hope everyone has a great Thanksgiving