Arianna had a birthday on june 25th she turned 5 years old. We went out for dinner for her birthday and she did really good with all the noises she even ate her cake really good she was even chewing some of it. I can't beleive that she is 5 already she has gotton so tall.


We went to Shriners to have her hips x-rayed again, everthing was pretty much the same as the last x-ray, her right hip is not dislocated and they couldn't see any thing with it that would be bothering her. The soccet is shallow from her not walking and using her legs. Her spine hasn't curved any either which is really good. they adjusted her AFO's while we were there so now she will tolerate them alot longer than she has been.

She also had her appiontment with Dr.Kornberg . That was a waste of time, we had to wait 2 hours for him to tell us that his therapists weren't equipped to work with Ari. Which is scarry because him and his therapist were who we were suppose to take her to for all her therapies when she was released for Brookes. He said he could cast her feet if we wanted to put her through it, but didn't really seem like he wanted to do anything. He referred us to a Dr in miami and said that her therapist would probably be able to work with Ari and maybe get her back into an inpatient rehab there.

Arianna also had er 48 hour EEG which only ended up being 24 hours. Her doctor got the information that he needed in 24 hours so let us go home. She is still having quite a lot of seizures and they are all brought on by her getting startled. He put her on Keppra and wants to take her off of the trileptol. He said that trileptol is not for the kind of seizures she is having and in some cases can make the kind she has worse. After being on keppra for a couple weeks she did nothing but cry through her therapies and anytime she was forced to work. She had a seizure that was about 1 minute long which she has never had (her seizures only last 7-8 seconds) and also has had a couple of ones where she just stares which she has also never done so we started to wean her from keppra . She is still very fussy and is not really trying at anything it has just changed her completely. We go back to the Dr this week I am hoping they will tell us we can just stop giving it to her now. He also said that she couldn't go to school and will have to be on the homebound program for now we weren't really sure we wanted her in school just yet. While we were in the Hospital for the EEG she got to play dress up and have her picture taken with Cinderella. I uploaded these already.

She has been doing really good in her VT sessions. She really likes the program that Mrs. Lois has on the computer. We have a joystick switch that she hooks to the computer and Arianna has to push it for the picture to come on. When she gets it to start she stops and watches it she has gotten so consistant with this. We have gotten this on video and will be posting it in the next couple of days.