Wow it has been 9 years ago today our lives changed forever...All the dreams we had for her like starting school, going to her first dance and senior prom and having a normal fulfilled life were replaced with doctors , specialists, and therapies.. We are so grateful for everyday that we have with her.We have learned so much over the years and still have much to learn.
Christmas 2015 |
The years of immobility has taken a toll on her body .. she has developed scoliosis which causes her a lot of pain and has gotten much worse over the last year. We have an appointment in May with the spinal surgeon to see if it is time for the surgery which is a scary to just think about we have had to reschedule the last 2 appointments due to her being sick please pray that she stays healthy so she doesn't have to miss it again. Her right hip is also out of place which causes her to keep her leg bent. The Dr wants to do surgeries which includes hamstring lengthening we have decided to hold off on it for now .
Arianna has grown so much she is almost as tall as I am now. She is so alert these days, she just listens and watches everything going on around her. She is going to school 2 times a week for her therapies and we now have a therapist that comes to the house once a week to work with her. She has not had much experience working with kids like Ari but she is trying and is reaching out to others for ideas and input as to what will help Ari.
I will post an update after her appointment in May . Thank you for continuing to pray for our princess..
I will post an update after her appointment in May . Thank you for continuing to pray for our princess..
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