Wow I can not believe its been so long since i did an update. I am sorry, for a while it was so hard to sit here and try to think of something new to say about Arianna's progress and before I knew it it is 2015 time really does fly by so fast.
Arianna is doing good, she has gotten so big she is also a big sister and also an Aunt now our oldest had a baby girl the end of March this year. Not to much has changed since the last update. She still has seizures daily but she is very alert she is on Lamictal for them it has decreased how many she has but she still has more than a dozen a day . She now has a back brace (which she does not tolerate for very long) because her spine is curved and scoliosis is starting the spinal Dr requested her to be on baclofen for her muscle tone hoping that it will help , her right hip is out of socket due to her muscle tone pulling it out so now the doctors want to do surgeries but we have opted not to at this point I think the baclofen is helping a little some. She goes to school for therapy 2 times a week for an hour and she gets PT, OT, and vision therapy there, she has started music therapy which she seems to really like. The therapist has these plastic tubes that are different colors and sizes that are put together to make a xylophone that is her favorite to play. She cant hit them by her self but she lets me move her arm to hit them. All her therapists are working on getting her to make choice by looking at something and blinking her eyes 2 times for the one she wants which she does most of the time.
Over all she is doing great no major health issues, nothing more than the occasional cold. We have been very blessed with her health and her not having to be hospitalized for anything. Well I think that just about catches you up on how she has been. I will try and do post every few months if nothing else with pictures.
Arianna with baby sister Makayla
Arianna meeting baby sister Makayla
Arianna and Makayla
Halloween Princess
Ari at therapy in 2013
Another one at therapy
Arianna is doing good, she has gotten so big she is also a big sister and also an Aunt now our oldest had a baby girl the end of March this year. Not to much has changed since the last update. She still has seizures daily but she is very alert she is on Lamictal for them it has decreased how many she has but she still has more than a dozen a day . She now has a back brace (which she does not tolerate for very long) because her spine is curved and scoliosis is starting the spinal Dr requested her to be on baclofen for her muscle tone hoping that it will help , her right hip is out of socket due to her muscle tone pulling it out so now the doctors want to do surgeries but we have opted not to at this point I think the baclofen is helping a little some. She goes to school for therapy 2 times a week for an hour and she gets PT, OT, and vision therapy there, she has started music therapy which she seems to really like. The therapist has these plastic tubes that are different colors and sizes that are put together to make a xylophone that is her favorite to play. She cant hit them by her self but she lets me move her arm to hit them. All her therapists are working on getting her to make choice by looking at something and blinking her eyes 2 times for the one she wants which she does most of the time.
Over all she is doing great no major health issues, nothing more than the occasional cold. We have been very blessed with her health and her not having to be hospitalized for anything. Well I think that just about catches you up on how she has been. I will try and do post every few months if nothing else with pictures.
Arianna with baby sister Makayla
Arianna meeting baby sister Makayla
Arianna and Makayla
Halloween Princess
Ari at therapy in 2013
Another one at therapy
Ari meeting her niece Kailani
Arianna in her back brace at school this year
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